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#191
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"Tanada" wrote in message
hlink.net... UPDATE: We finally got hold of Dr Ewend's secretary, who had Dr Ewend call us back. Dr Ewend was in surgery all day yesterday, so couldn't get hold of us, and we couldn't get hold of him. Anyway, the news is the best possible right now. The specialists (radiology pathologists specializing in brain tumors) agree with Dr Ewend that there is no signs that the tumor has grown. The recommended course now is to give Rob a course of large doses of temodar (I never spell this correctly) for a year, as a precaution to make sure the sucker is dead, nag at Rob to KEEP TAKING HIS MEDS, and keep in eye on him. After a year, or as long as he can tolerate the stuff, whichever comes first, Rob will be taken off the Temodar. We're still on MRIs every two to three months, and regular visits with the drs. I'm beginning to think I need to cross cross stitch a picture for them. I think now that the bad temper and inappropriate comments were because of stress and the steroids. Rob really doesn't remember saying any of those shocking comments or blowing up at anyone. I believe him. Rob has always admitted to any thing he's done, so long as he remembers it. Pam S. really relieved We're really relieved, too, Pam. Purrs and prayers for Rob's continued improvement. Sam and Ramona |
#192
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"Tanada" wrote in message
hlink.net... UPDATE: We finally got hold of Dr Ewend's secretary, who had Dr Ewend call us back. Dr Ewend was in surgery all day yesterday, so couldn't get hold of us, and we couldn't get hold of him. Anyway, the news is the best possible right now. The specialists (radiology pathologists specializing in brain tumors) agree with Dr Ewend that there is no signs that the tumor has grown. The recommended course now is to give Rob a course of large doses of temodar (I never spell this correctly) for a year, as a precaution to make sure the sucker is dead, nag at Rob to KEEP TAKING HIS MEDS, and keep in eye on him. After a year, or as long as he can tolerate the stuff, whichever comes first, Rob will be taken off the Temodar. We're still on MRIs every two to three months, and regular visits with the drs. I'm beginning to think I need to cross cross stitch a picture for them. I think now that the bad temper and inappropriate comments were because of stress and the steroids. Rob really doesn't remember saying any of those shocking comments or blowing up at anyone. I believe him. Rob has always admitted to any thing he's done, so long as he remembers it. Pam S. really relieved We're really relieved, too, Pam. Purrs and prayers for Rob's continued improvement. Sam and Ramona |
#193
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"Tanada" wrote in message
hlink.net... UPDATE: We finally got hold of Dr Ewend's secretary, who had Dr Ewend call us back. Dr Ewend was in surgery all day yesterday, so couldn't get hold of us, and we couldn't get hold of him. Anyway, the news is the best possible right now. The specialists (radiology pathologists specializing in brain tumors) agree with Dr Ewend that there is no signs that the tumor has grown. The recommended course now is to give Rob a course of large doses of temodar (I never spell this correctly) for a year, as a precaution to make sure the sucker is dead, nag at Rob to KEEP TAKING HIS MEDS, and keep in eye on him. After a year, or as long as he can tolerate the stuff, whichever comes first, Rob will be taken off the Temodar. We're still on MRIs every two to three months, and regular visits with the drs. I'm beginning to think I need to cross cross stitch a picture for them. I think now that the bad temper and inappropriate comments were because of stress and the steroids. Rob really doesn't remember saying any of those shocking comments or blowing up at anyone. I believe him. Rob has always admitted to any thing he's done, so long as he remembers it. Pam S. really relieved We're really relieved, too, Pam. Purrs and prayers for Rob's continued improvement. Sam and Ramona |
#194
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In article , Tanada
wrote: Susan M wrote: Hey Pam: I was away from the ng when you posted the original message. I'm glad that Rob's tumor is under still control, though I don't see the original post to see exactly what happened - purrs to all of you. Briefly (though that isn't possible for me), we were coming back from vacation, when Rob had a seizure. The ER doc had a CT done and told us that there was some calcium build up, but nothing major that they could see and for Rob to go on steroids and stay on his meds. (Rob had decided that he couldn't remember to take his meds, so why bother) We got back and called Rob's oncologist who had Rob get an MRI. The radiologist reading the MRI decided that the tumors were growing back in two places. We were then sent to UNC/Chapel Hill, where we saw a neurosurgeon named Dr Mike Ewend, who said that he didn't see any signs that the tumors were growing and then put the MRI films before the experts in his group and on the tumor board. They agreed with him on the tumors not growing and on what he wants next, Temodar for the next 12 months, or however long Rob can tolerate it, whichever comes first. Rob's military oncologist, who's very good BTW, is wondering why put Rob back on Temodar if there is no signs of it growing back. The oncologist and surgeon now get to work out the best treatment for Rob. We're celebrating. I hadn't been familiar with Temodar, but had a chance to read some of the relevant medical literature today. It's revolutionized the treatment of brain cancer, with effectiveness nothing before has ever approached. Good luck! |
#195
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In article , Tanada
wrote: Susan M wrote: Hey Pam: I was away from the ng when you posted the original message. I'm glad that Rob's tumor is under still control, though I don't see the original post to see exactly what happened - purrs to all of you. Briefly (though that isn't possible for me), we were coming back from vacation, when Rob had a seizure. The ER doc had a CT done and told us that there was some calcium build up, but nothing major that they could see and for Rob to go on steroids and stay on his meds. (Rob had decided that he couldn't remember to take his meds, so why bother) We got back and called Rob's oncologist who had Rob get an MRI. The radiologist reading the MRI decided that the tumors were growing back in two places. We were then sent to UNC/Chapel Hill, where we saw a neurosurgeon named Dr Mike Ewend, who said that he didn't see any signs that the tumors were growing and then put the MRI films before the experts in his group and on the tumor board. They agreed with him on the tumors not growing and on what he wants next, Temodar for the next 12 months, or however long Rob can tolerate it, whichever comes first. Rob's military oncologist, who's very good BTW, is wondering why put Rob back on Temodar if there is no signs of it growing back. The oncologist and surgeon now get to work out the best treatment for Rob. We're celebrating. I hadn't been familiar with Temodar, but had a chance to read some of the relevant medical literature today. It's revolutionized the treatment of brain cancer, with effectiveness nothing before has ever approached. Good luck! |
#196
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In article , Tanada
wrote: Susan M wrote: Hey Pam: I was away from the ng when you posted the original message. I'm glad that Rob's tumor is under still control, though I don't see the original post to see exactly what happened - purrs to all of you. Briefly (though that isn't possible for me), we were coming back from vacation, when Rob had a seizure. The ER doc had a CT done and told us that there was some calcium build up, but nothing major that they could see and for Rob to go on steroids and stay on his meds. (Rob had decided that he couldn't remember to take his meds, so why bother) We got back and called Rob's oncologist who had Rob get an MRI. The radiologist reading the MRI decided that the tumors were growing back in two places. We were then sent to UNC/Chapel Hill, where we saw a neurosurgeon named Dr Mike Ewend, who said that he didn't see any signs that the tumors were growing and then put the MRI films before the experts in his group and on the tumor board. They agreed with him on the tumors not growing and on what he wants next, Temodar for the next 12 months, or however long Rob can tolerate it, whichever comes first. Rob's military oncologist, who's very good BTW, is wondering why put Rob back on Temodar if there is no signs of it growing back. The oncologist and surgeon now get to work out the best treatment for Rob. We're celebrating. I hadn't been familiar with Temodar, but had a chance to read some of the relevant medical literature today. It's revolutionized the treatment of brain cancer, with effectiveness nothing before has ever approached. Good luck! |
#197
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"Howard Berkowitz" wrote in message
... I hadn't been familiar with Temodar, but had a chance to read some of the relevant medical literature today. It's revolutionized the treatment of brain cancer, with effectiveness nothing before has ever approached. Good luck! Howard, you are extremely knowledgeable about medications (among other things), are you in the medical field, really, really smart, or both? ; Hugs, CatNipped |
#198
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"Howard Berkowitz" wrote in message
... I hadn't been familiar with Temodar, but had a chance to read some of the relevant medical literature today. It's revolutionized the treatment of brain cancer, with effectiveness nothing before has ever approached. Good luck! Howard, you are extremely knowledgeable about medications (among other things), are you in the medical field, really, really smart, or both? ; Hugs, CatNipped |
#199
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"Howard Berkowitz" wrote in message
... I hadn't been familiar with Temodar, but had a chance to read some of the relevant medical literature today. It's revolutionized the treatment of brain cancer, with effectiveness nothing before has ever approached. Good luck! Howard, you are extremely knowledgeable about medications (among other things), are you in the medical field, really, really smart, or both? ; Hugs, CatNipped |
#200
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In article , "CatNipped"
wrote: "Howard Berkowitz" wrote in message ... I hadn't been familiar with Temodar, but had a chance to read some of the relevant medical literature today. It's revolutionized the treatment of brain cancer, with effectiveness nothing before has ever approached. Good luck! Howard, you are extremely knowledgeable about medications (among other things), are you in the medical field, really, really smart, or both? ; Well, let me put it this way -- I'm not a physician, but I simulate them on computers. I manage to be underemployed both in network engineering and clinical computing! I'm more published in network engineering, but medicine has been a lifelong interest. Some of my projects include expert systems that try to put the "doc into the box," so I have to get into the fundamental medical science, not just this pill does that. |
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